Sunday, May 16, 2010

MRI

Tomorrow will be a big day for Luke. He is having an MRI at the hospital on his brain. He had an EEG about 2 weeks ago which revealed that he has been having seizures off and on day and night, hardly noticeable but sharp waves on both the left and right side. He is now on medication to control the seizures but we have not really noticed a change since we were not aware of them before. The EEG was a sleep deprived test, they try to stress the body to see if it will seizure. This meant Daddy had to keep him awake until midnight and I had to wake him at 4am and keep him awake until the test was conducted. Luckily big brother Steven brought over Wii and we played that downstairs. Lily joined us at 4:30am much to my dismay. He did great at the testing but I could tell there were problems when the analyst said he would call the neurologist and had us wait around. The neurologist had us in his office at 7:15 the next morning. I really like the Dr. and he was optimistic that this is something Luke will grow out of. We will know more after the MRI. Suddenly we have to worry about Luke climbing up big slides and being in the bathtub without someone right next to him. Luke has been a trooper about taking the medicine and is working up to his full does over the next three weeks. He is such a sweet, sweet boy. We also have to make sure he keeps on a routine schedule for sleep as much as possible. Luke is the first one to jump into the middle of a bunch of kids playing and just join in, his laugh is contagious and he is always joking around. He loves to cuddle with Mommy and still begs for me to carry him even though that has slowed way down now that he is over 40#. I'm just glad we have the resources to get him the care he needs, not sure what would have happened in China.
Luke has also qualified for the English Language Learners program for next year. This means he will be at a different school than Lily and we have not explained that to him yet. He will repeat Kindergarten as he needs more work on his comprehension skills and writing. Of course the seizures were probably a hindrance in his learning. If once a minute your mind blanked out and came back missing part of a sentence, it may be hard to keep up. I'm so thankful he has the teacher he has this year. Mrs. Moran has been wonderful with Luke and keeps us posted on his progress. We will be meeting Sarah Henderson-Lee this week, his ELL teacher for next year. Luke will be in a regular class most of the day but for one hour he will be out in a small group with Sarah perfecting his English. I really want him to have a strong foundation before moving on to 1st grade. Since his birthday is in April, he is one of the younger ones in class.
I'm trying to remain optimistic about the MRI, kind of scary though. More later.

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